Canadian Association of Hospital Dentists Conference
May 13, 2016 – Halifax, NS
Importance of registries and databases in clinical practice and research
Nick M. Makhoul
In this session, the speakers will demonstrate the importance and value of registry building in clinical practice and research. The introductory talk will describe different types of registries and databases, define their desirable features, and address some of the pitfalls to be avoided. Examples of the uses and usefulness of registries from diverse perspectives and fields of application will be provided, for instance in quality assurance, outcomes research, quality of care improvement, and healthcare systems management. This talk will be followed by a description of concrete applications in the Canadian setting. Dr. Rousseau will present the case of a pilot study on potentially malignant oral lesions which led to the conception of a registry to facilitate future recruitment for clinical and epidemiological studies. Dr. Makhoul will describe his experience building an online web-based registry at the McGill University Health Centre for quality assurance in the delivery of oral cancer surgical care. Lastly, Dr. Wood will present on the extensive patient databases created and maintained by the Oral Oncology Group at Princess Margaret Hospital.
Marie-Claude Rousseau, PhD
Associate Professor, Institut national de la recherche scientifique (INRS), Centre Armand-Frappier
Adjunct Professor, Faculty of Dentistry, McGill University
Adjunct Professor, School of Public Health, Université de Montréal
Professor Rousseau is a chronic disease epidemiologist, Associate Professor at INRS within the network of Université du Québec. She is also affiliated with both the Faculty of Dentistry at McGill University and School of Public Health at Université de Montréal. Her research focuses on the etiology of inflammatory and autoimmune diseases, as well as cancer, particularly head and neck cancer. In the context of her research program, she has used population-based registries and administrative health databases, and established large databases for specific studies. Over the last decade, her research has been funded by the Canadian Institutes of Health Research, Canada Foundation for Innovation, Canadian Cancer Society, Fonds de la recherche du Québec – Santé, and several other governmental agencies and foundations.
Nicholas Makhoul DMD MD FRCD(C) Dip ABOMS FACS
Director, Division of Oral and Maxillofacial Surgery
Chief, Department of Dentistry and Oral and Maxillofacial Surgery, McGill University Health Centre
Assistant Professor, Faculty of Dentistry, McGill University
Nicholas Makhoul is an Oral and Maxillofacial Surgeon with sub-specialization in Maxillofacial Oncology and Microvascular Reconstructive Surgery. He is situated at the Montreal General Hospital and is director of the McGill Oral and Maxillofacial Residency Program and a practicing academic maxillofacial surgeon. His research interests include the use of tissue engineering principles to achieve functional and esthetic reconstructions in patients that are missing hard and soft tissue after tumor ablation, trauma or congenital deformities. Additionally, Dr. Makhoul has a CAOMS grant to develop an oral oncology database, collaborating with specialists in bio-statistics and epidemiology. The aim of this large scale database will be to assess outcomes in maxillofacial oncology patients as well as to identify factors that contribute to increased quality and quantity of life, with the aim of developing future randomized controlled trials based on variables identified in our database.
Dr. Wood graduated with his DDS from the University of Toronto in 1982. He went on to complete specialty training in Radiology and an MSc degree at Toronto and then a PhD in Maxillofacial Radiology at the University of Stellenbosch in Cape Town South Africa. Dr. Wood became a Diplomate of the American Board of Forensic Odontology in 2004. He has been active in hospital dentistry for over 30 years and is currently Associate Professor and Chief of Dental Oncology, Ocular and Maxillofacial Prosthetics at University Health Network Princess Margaret Hospital in Toronto. His clinical practice is limited to treating Oncology patients, pre and peri-surgery cardiac and organ transplant patients. He has been active in Forensic Odontology since 1986 and has been the “minder” of over 100 separate and linked administrative, research and quality control databases some of which are over 35 years old.